Generation Study Education and Training

6–7 February 2024

Wellcome Genome Campus, UK

Overview

Genomics England’s Newborn Genomes Programme is delivering NHS-embedded Generation Study, to explore the benefits, challenges, and practicalities of sequencing and analysing newborns’ genomes. The Generation Study will evaluate the utility and feasibility of screening newborns for a larger number of childhood-onset rare genetic conditions and help understand how genomic and health data could be used to improve knowledge and treatments. In addition, the Programme will explore the potential risks and benefits of storing an individual’s genome over their lifetime.

In 2022-2023, an Education and Training Working Group developed a Clinical Pathway Initiative for the Generation Study, and resources have subsequently been created.

Developed in association with Genomics England and the NHS England National Genomics Education team, this retreat aims to implement education and training in the Generation Study for the healthcare workforce, including all areas from recruitment to returning results. Longer-term and broader goals, such as increasing the understanding and applicability of genomics to screening and healthcare for the workforce in general, will also be discussed.

Target Audience

The retreat is designed for participants responsible for understanding who will need to be educated about the Generation Study, and how this training would be delivered. This may include educational or clinical leaders working at participating NHS Trusts and NHS Genomic Medicine Service Alliances.

Participation is by invitation only and registration details will be emailed to attendees.

Learning outcomes

Following attendance of this workshop, attendees will be able to:

Understand the Generation Study Clinical Pathway Initiative, including competencies and resources developed to meet these competencies (Note this will be the focus of the pre-retreat virtual session).
Use the Generation Study Clinical Pathway Initiative to identify workforce groups that will require education and training in their Trust/regional context.
Explore ways to evaluate the implementation of education and training, in order to continually iterate and improve as the study develops.
Design an ‘Action Plan’ to implement the Generation Study Clinical Pathway Initiative for successful delivery of the study.

Programme

Pre-retreat session

Pre-retreat virtual session will take place on Zoom on 22 January 2024 from 13.00 to 15.30. Zoom details will be emailed to the attendees.

In-person retreat

The retreat will start at approximately 09.00 on Tuesday, 6 February and close at approximately 16.00 on Wednesday, 7 February 2024. Participants who have registered for accommodation can stay at the Hinxton Hall Conference Centre for the nights of 5 and 6 February 2024.

Post-retreat virtual session

Post-retreat virtual session will take place on Zoom on Thursday, 25 April 2024 from 13.00 to 16.00.

All participants are requested to attend the pre- and post-retreat sessions, as well as in-person sessions so that they receive the full benefit of discussion workshops and networking opportunities.

Sessions:

Clinical Pathway Initiative (CPI) and the associated resources
Facilitated discussions on expectations for the retreat
How to deliver education at pace and scale
Experiences and lessons learned so far
Competency assessment
Evaluation process, methods and tools
Developing your action plan with peer and expert support – including group discussions